Understand your risk. Make informed decisions. Advocate for yourself. Support the research.
GASTRIC CANCER AND GENETIC REGISTRIES
The more researchers know about gastric cancer and affected patients and families the better. I encourage participation in as many registries as you see fit. Be sure to understand what is involved. Contact registry administrators before participating in any gastric cancer registry to insure that you are comfortable with how your information will be used, how your privacy will be protected, and what the benefits will be to your participation.
We will add information about gastric cancer registries worldwide as we become aware of them.
GCR: Gastric Cancer Registry
Gastric Cancer Registry
The Gastric Cancer Registry is supported by the Gastric Cancer Foundation and led by the Ji Research Group of Stanford University School of Medicine.
You are eligible for this study if you are at least 18 years old and meet one of the following criteria:
- You have or have had gastric cancer
- You have a family history of gastric cancer in a first or second degree relative
- You have a known germline mutation in your CDH1 (E-Cadherin) gene.
PROMPT: Prospective Registry Of MultiPlex Testing
PROMPT is an online research registry for people who have multiplex gene panels – a newer form of genetic testing that looks for mutations in several different genes at once.
The objective is to follow people with mutations or variants in genes on these panels, so that patients, physicians, and researchers can more clearly understand these lesser-known risks.
Through your participation, you can help researchers collect data to better understand and prevent cancer.
The study is for anyone who has had a panel test and tested positive for either a mutation or a VUS in the following genes: ATM, BARD1, BRIP1, CDH1, CHEK1, PALB2, RAD51C, RAD51D