Understand your risk. Make informed decisions. Advocate for yourself. Support the research.
HDGC RESEARCH FUND
The HDGC (Hereditary Diffuse Gastric Cancer) Research Fund was established by Karen Chelcun Schreiber in February 2018 for the single purpose of funding HDGC translational research at the Centre for Translational Cancer Research (CTCR) at the University of Otago in Dunedin, New Zealand. The mission of the HDGC Research Fund is to accelerate CTCR’s most promising research with the potential to greatly improve the lives of HDGC families worldwide.
Karen not only wanted to support HDGC research directly through a bequest, but also through regular donations during her lifetime. To accomplish this the HDGC Research Fund was established with the University of Otago Foundation Trust through an initial donation of US$5,000. The donation was made through the Alumni of University of Otago in America (AUOA) Inc., who have generously agreed to match the donation and promote the existence of the Fund through the AUOA website. In addition, Karen submitted an Intention of Bequest of US$100,000 to the research fund in honor and memory of her parents, Fred and Elaine Chelcun, and her brother Greg Chelcun.
Karen worked with the AUOA Board to establish the fund in a manner that makes it easy for anyone wishing to support the mission through direct donations or through a bequest. Full details of the fund are provided below.
On behalf of all of the HDGC patients and families throughout the world, thank you for supporting this important research.
The fund, which will be known as the HDGC Research Fund, has been established with the University of Otago Foundation Trust, to support research into Hereditary Diffuse Gastric Cancer (HDGC) at the Centre for Translational Cancer Research (CTCR), University of Otago, Dunedin, New Zealand. Hereditary Diffuse Gastric Cancer (HDGC) is defined as an inherited cancer syndrome that is dominated by a high incidence of stomach cancer, but can include other cancers such as lobular breast cancer.
Use of Funds
The goal is to build the fund so that it provides income that can be used to support research into Hereditary Diffuse Gastric Cancer. However, funds will be distributed on an annual basis to support specific HDGC projects at the Center for Translational Cancer Research, which will lead to improvements in the health and well-being of families affected by HDGC.
Oversight of the Fund is provided by three entities with all groups working together to ensure the Fund is managed in strict accordance with the Fund policy and that all donations are appropriately directed and managed. The ultimate oversight being applied by the University of Otago, and the University of Otago Foundation Trust.
The fund will be managed by the University of Otago Foundation Trust Treasury Accountant in accordance with the Foundation’s policies and procedures. The Trust is responsible for investing the money from all funds to maximize returns while accounting fore each separate fund within the Foundation’s total investment portfolio.
The University of Otago, Department of Alumni Relations (DARO) will provide oversight for the management of the Fund from the perspective of ensuring the terms of the Fund are met and the money in the Fund is appropriately distributed to the Centre for Translational Cancer Research (CTCR).
Distributions will be made from the Fund in response to approved applications for funding of research projects on Hereditary Diffuse Gastric Cancer in the Centre for Translational Cancer Research (CTCR).
AUOA will provide oversight for the direction of funds to the University of Otago Foundation Trust and ensure that all donations received ty AUOA are directed to the HDGC Research Fund appropriately.
The Centre for Translational Cancer Research will provide an annual report to the University of Otago and AUOA detailing the use of funds and the results of research that has been supported by the HDGC Research Fund.
The University of Otago Foundation Trust will provide an annual report that details the opening balance, donations received, distributions made, and closing balance of the Fund.
These reports will be published on this website as well as the AUOA website and progress reports may also appear in the University of Otago Foundation Report which is published annually. Donor information will remain confidential but donors may choose to be recognized on this website, on the AUOA website and in the University of Otago Foundation Report if they wish.
US donors can make tax deductible donations through the AUOA which is a 501(c)(3) corporation. Donations can be made through the AUOA by credit card, debit card, or direct bank transfer through the AUOA website, or by check mailed to the registered office of the AUOA.
All donations will be acknowledged in writing with an official receipt for tax purposes.
Donors residing outside the US may also donate through the AUOA website, although donations from outside of the US are subject to the tax laws in the donor’s resident country.
While the priority is to provide immediate funding for HDGC research the long term goal is that the Fund will become an ‘endowment’ when it reaches a certain threshold that allows the annual income to be distributed for HDGC research in addition to the current annual donations received and distributed for the same purpose. This, of course, will be contingent upon successful fundraising of both direct donations and funds generated through planned giving.
Language for Bequests
If you choose to make a bequest in a will or a trust, please share the following information with your attorney regarding designation of the beneficiary.
Those donating to the HDGC Research Fund through the AUOA in America:
- The Alumni of the University of Otago in America, Inc. (AUOA), which supports the University of Otago, located in Dunedin, New Zealand, or its successor in interest, to be contributed to the HDGC Research Fund whose sole purpose is to support HDGC research at the Centre for Translational Cancer Research, University of Otago, New Zealand.
Those donating directly to University of Otago in New Zealand:
- The University of Otago, located in Dunedin, New Zealand, or its successor in interest, to be contributed to the HDGC Research Fund whose sole purpose is to support HDGC research at the Centre for Translational Cancer Research, University of Otago, New Zealand.
Questions about the Fund?
Contact Karen Chelcun Schreiber for more information.
HDGC Research Fund Donations
Make a Donation
The Alumni of University of Otago in America, Inc. is a 501(c)(3) nonprofit organization under the Internal Revenue Code, therefore all gifts made to the fund are tax deductible to the fullest extent of the law.
University of Otago
Dunedin, New Zealand
Centre for Translational Cancer Research
Professor Parry Guilford, Director
University of Otago
Dunedin, New Zealand