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Genetic counseling is an essential component of the evaluation and management of HDGC patients and families. Genetic counseling is essential for each and every one of us who may be at risk for any hereditary disease or hereditary cancer syndrome. Certified genetic...read more
Kia Ora (Hello)! In March of 2019, the University of Otago along with three supporting organizations hosted a three-day meeting to begin the review and revision process of the clinical guidelines for Hereditary Diffuse Gastric Cancer syndrome. The meeting of the...read more
(Image credit: NIH) Summary of Editorial: “Establishing a center of excellence for hereditary diffuse gastric cancer syndrome” Published in Jan 2019 in the Journal of Surgical Oncology Because it is thought that fewer than 5% of stomach cancer cases are due to...read more
What is a Hereditary Diffuse Gastric Cancer Center of Excellence? The term is used frequently in the IGCLC 2015 HDGC Clinical Guideline. This is a question asked by many in the HDGC community who are trying to figure out what sort of medical expertise to look for and...read more
Finding out that you have an inherited risk of cancer comes with lots of emotions and challenges. Over the past ten years I have experienced the ups and downs that come with knowing I have a mutation in the CDH1 gene. Here are some of the challenging decisions I have...read more
IGCLC HDGC Clinical Guidelines Update Workshop: 2014 Nijmegen, The Netherlands From March 19-21, 2014 I had the pleasure of participating in the 2nd Consensus meeting on Hereditary Gastric Cancer at the Radbound University Medical Centre in Nijmegen, The...read more