Understand your risk. Make informed decisions. Advocate for yourself. Support the research.
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I hope to capture your attention with topics interesting enough to keep you coming back for more, and to inspire you to comment and share your thoughts with others. Suggestions for topics and guest authors are welcomed!
Share your fundraising successes, tell us about who you are honoring or remembering. Raise awareness about another health concern…we know how important awareness is. Laughter is the best medicine…so share the humorous side of this journey too.
Most of all – Enjoy!
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Establishing a center of excellence for Hereditary Diffuse Gastric Cancer syndrome
(Image credit: NIH) Summary of Editorial: “Establishing a center of excellence for hereditary diffuse gastric cancer syndrome” Published in Jan 2019 in the Journal of Surgical Oncology Because it is thought that fewer than 5% of stomach cancer cases are...
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Center of Excellence for Hereditary Diffuse Gastric Cancer syndrome
What is a Hereditary Diffuse Gastric Cancer Center of Excellence? The term is used frequently in the IGCLC 2015 HDGC Clinical Guideline. This is a question asked by many in the HDGC community who are trying to figure out what sort of medical expertise to look for and...
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Decisions, decisions…
Finding out that you have an inherited risk of cancer comes with lots of emotions and challenges. Over the past ten years I have experienced the ups and downs that come with knowing I have a mutation in the CDH1 gene. Here are some of the challenging...
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HDGC Clinical Guideline Update Workshop: 2014
IGCLC HDGC Clinical Guidelines Update Workshop: 2014 Nijmegen, The Netherlands From March 19-21, 2014 I had the pleasure of participating in the 2nd Consensus meeting on Hereditary Gastric Cancer at the Radbound University Medical Centre in Nijmegen, The...
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Welcome!
Welcome! Come on in. I'd love to show you around! I'm so excited to introduce you to my new mission, one that is entirely focused on Hereditary Diffuse Gastric Cancer. To sum it up in a few words . . . HDGC: Understand your risk. Make informed decisions. Advocate for...
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Stomachless
"Stomachless" artwork by Eleanor Davis I’m stomachless almost ten years now. I never thought much about my stomach until I had to decide whether or not to keep it. I have to think hard to remember details of those earlier years and the discovery of HDGC and my...
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