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Support the Access to Genetic Counselor Services Act of 2019
Genetic counseling is an essential component of the evaluation and management of HDGC patients and families. Genetic counseling is essential for each and every one of us who may be at risk for any hereditary disease or hereditary cancer syndrome. Certified genetic...
CDH1 | HDGC Guideline Update Workshop 2019
Kia Ora (Hello)! In March of 2019, the University of Otago along with three supporting organizations hosted a three-day meeting to begin the review and revision process of the clinical guidelines for Hereditary Diffuse Gastric Cancer syndrome. The meeting of the...
Establishing a center of excellence for Hereditary Diffuse Gastric Cancer syndrome
(Image credit: NIH) Summary of Editorial: “Establishing a center of excellence for hereditary diffuse gastric cancer syndrome” Published in Jan 2019 in the Journal of Surgical Oncology Because it is thought that fewer than 5% of stomach cancer cases are due to...
Center of Excellence for Hereditary Diffuse Gastric Cancer syndrome
What is a Hereditary Diffuse Gastric Cancer Center of Excellence? The term is used frequently in the IGCLC 2015 HDGC Clinical Guideline. This is a question asked by many in the HDGC community who are trying to figure out what sort of medical expertise to look for and...
Decisions, decisions…
Finding out that you have an inherited risk of cancer comes with lots of emotions and challenges. Over the past ten years I have experienced the ups and downs that come with knowing I have a mutation in the CDH1 gene. Here are some of the challenging decisions I have...
HDGC Clinical Guideline Update Workshop: 2014
IGCLC HDGC Clinical Guidelines Update Workshop: 2014 Nijmegen, The Netherlands From March 19-21, 2014 I had the pleasure of participating in the 2nd Consensus meeting on Hereditary Gastric Cancer at the Radbound University Medical Centre in Nijmegen, The...