Understand your risk. Make informed decisions. Advocate for yourself. Support the research.
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I hope to capture your attention with topics interesting enough to keep you coming back for more, and to inspire you to comment and share your thoughts with others. Suggestions for topics and guest authors are welcomed!
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CDH1 | HDGC Guideline Update Workshop 2019
Kia Ora (Hello)! In March of 2019, the University of Otago along with three supporting organizations hosted a three-day meeting to begin the review and revision process of the clinical guidelines for Hereditary Diffuse Gastric Cancer syndrome. The meeting...
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Establishing a center of excellence for Hereditary Diffuse Gastric Cancer syndrome
(Image credit: NIH) Summary of Editorial: “Establishing a center of excellence for hereditary diffuse gastric cancer syndrome” Published in Jan 2019 in the Journal of Surgical Oncology Because it is thought that fewer than 5% of stomach cancer cases are...
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Center of Excellence for Hereditary Diffuse Gastric Cancer syndrome
What is a Hereditary Diffuse Gastric Cancer Center of Excellence? The term is used frequently in the IGCLC 2015 HDGC Clinical Guideline. This is a question asked by many in the HDGC community who are trying to figure out what sort of medical expertise to look for and...
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Decisions, decisions…
Finding out that you have an inherited risk of cancer comes with lots of emotions and challenges. Over the past ten years I have experienced the ups and downs that come with knowing I have a mutation in the CDH1 gene. Here are some of the challenging...
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HDGC Clinical Guideline Update Workshop: 2014
IGCLC HDGC Clinical Guidelines Update Workshop: 2014 Nijmegen, The Netherlands From March 19-21, 2014 I had the pleasure of participating in the 2nd Consensus meeting on Hereditary Gastric Cancer at the Radbound University Medical Centre in Nijmegen, The...
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Welcome!
Welcome! Come on in. I'd love to show you around! I'm so excited to introduce you to my new mission, one that is entirely focused on Hereditary Diffuse Gastric Cancer. To sum it up in a few words . . . HDGC: Understand your risk. Make informed decisions. Advocate for...
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